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Your One Stop for Epilepsy Support and Resources in the U.S. & Canada

July 27, 2022

By Amber Kaiser

Epilepsy Resources in the U.S.

Welcome to your one stop search for epilepsy support organizations, resources and nonprofits in the U.S. & Canada! You’ll find a resource in almost every state and if they aren’t close to where you live to attend live events or classes, I recommend reaching out to the organization with any questions and to stay connected with their online resources. A lot of epilepsy educational classes and talks are now available online as well!

Although there is still a lot of opportunity for growth in epilepsy support services, there are many states now with Epilepsy Foundation (EF) Chapters. Also known as Epilepsy Foundation of America, EF was established in 1968 and found in most major cities in every state except North Dakota. To see if there is an EF affiliate near you, enter your zip code here, or check out the EF chapters below as well as other epilepsy support groups in your state. EF and most large affiliates have a plethora of resources like online seizure first aid training, epilepsy fundraising events, camps, epilepsy education classes as well as a 24/7 epilepsy helpline at 1-800-332-1000.

Created just a few years ago in 2018, Epilepsy Alliance America (EAA) is one of the newest epilepsy organizations. EAA’s mission is “dedicated to supporting those impacted by epilepsy in local communities confronting the spectrum of challenges created by seizures.” You can become a member and they currently have Alliances in several states including Florida, Louisiana and California. They provide more than a dozen services as well like seizure first aid training, medication assistance, camps and employment assistance. EAA also has an alliance with the Puerto Rican Epilepsy Society.

Check out your state below to see which epilepsy organizations and services may be available directly in your area as well as foundations created by families who have lived with epilepsy.


Epilepsy Foundation Alabama


Epilepsy Foundation Alaska


Epilepsy Foundation Arizona


Epilepsy Foundation Arkansas


Epilepsy Foundation Greater Orange County

Epilepsy Foundation Los Angeles

Epilepsy Foundation Northern California

Epilepsy Foundation San Diego County

Sofie’s Journey—Epilepsy Awareness Day at Disneyland

LGS Foundation

Epilepsy Education Everywhere

Eric’s Corner

The Cameron Boyce Foundation

Greg Grunberg Epilepsy Foundation (known as Talk About It!)


Epilepsy Foundation Colorado & Wyoming

Chelsea Hutchison Foundation

Realm of Caring


Epilepsy Foundation Connecticut


Epilepsy Foundation Delaware


Epilepsy Foundation Florida

Epilepsy Alliance Florida

Epilepsy Assistance Foundation

Josh Provides Epilepsy Assistance Foundation


Epilepsy Foundation Georgia


Epilepsy Foundation Hawaii


Epilepsy Foundation Idaho


Epilepsy Foundation Greater Chicago

Epilepsy Foundation Greater Southern Illinois

Epilepsy Advocacy Network

CURE Epilepsy

Danny Did Foundation


Epilepsy Foundation Indiana


Epilepsy Foundation Iowa


Epilepsy Foundation Missouri & Kansas


Epilepsy Foundation Kentuckiana


Epilepsy Foundation Louisiana

Epilepsy Alliance Louisiana

Epilepsy Alliance America


Epilepsy Foundation New England


Epilepsy Foundation Maryland

Epilepsy Foundation Metro DC

National Association of Epilepsy Centers (DC)


Epilepsy Foundation New England


Epilepsy Foundation Michigan


Epilepsy Foundation Minnesota


Epilepsy Foundation Mississippi


Epilepsy Foundation Missouri & Kansas

Purple Peace Foundation


Epilepsy Foundation Montana


Epilepsy Foundation Nebraska


Epilepsy Foundation Nevada

Mickie's Miracles

New Hampshire

Epilepsy Foundation New England

New Jersey

Epilepsy Foundation New Jersey

Epilepsy Services New Jersey

The Anita Kaufmann Foundation

New Mexico

Epilepsy Foundation New Mexico

New York

Epilepsy Foundation Long Island

Epilepsy Foundation Metropolitan New York

Epilepsy Foundation Northeastern New York

Epilepsy Alliance West Central New York

North Carolina

Epilepsy Foundation North Carolina

Epilepsy Alliance North Carolina

North Dakota



Epilepsy Foundation Ohio

Epilepsy Alliance Ohio


Epilepsy Foundation Oklahoma


Epilepsy Foundation Oregon

Southern Oregon Epilepsy Group


Epilepsy Foundation Eastern Pennsylvania

Epilepsy Association of Western and Central PA

Emma Bursick Memorial Fund

Rhode Island

Epilepsy Foundation New England

South Carolina

Epilepsy Foundation South Carolina

South Carolina Advocated for Epilepsy

South Dakota

Epilepsy Foundation South Dakota


Epilepsy Foundation East Tennessee

Epilepsy Foundation Southeast Tennessee


Epilepsy Foundation Central & South Texas

Epilepsy Foundation Houston/Dallas-Fort Worth/West Texas (has also been referred to as High Plains Epilepsy Association)


Epilepsy Foundation Utah


Epilepsy Foundation New England


Epilepsy Foundation Virginia


Epilepsy Foundation Washington

West Virginia

Epilepsy Foundation West Virginia


Epilepsy Foundation Wisconsin


Epilepsy Foundation Colorado & Wyoming

Other Resources for Coexisting Conditions

Do you or your loved one live with epilepsy as well as other neurological disorders like cerebral palsy? Coexisting conditions can be very challenging for both the patient and their families. According to the American Academy of Pediatrics, children with cerebral palsy often have other coexisting conditions including 1 in 4 have epilepsy. Learn more in this really helpful resource, the Cerebral Palsy Guide.

Epilepsy Resources in Canada

Epilepsy Canada

Epilepsy Canada was founded in 1966 and their mission is to “find a cure for epilepsy, by promoting and funding patient focused research.” You can follow them on Instagram and Facebook, check out their volunteer opportunities and participate in their events.

Canadian Epilepsy Alliance

The Canadian Epilepsy Alliance (CEA) is one of the major resources in Canada for epilepsy support and provides a “Canada-wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.” You can follow them on most social media channels including Twitter and Instagram, read their stories and participate in their events and fundraisers throughout the year. Canadian Epilepsy Alliance has agencies throughout Canada in different provinces including British Columbia, Alberta, Saskatchewan, Manitoba, Ontario, Quebec, Maritime Region and Newfoundland & Labrador.

Center for Epilepsy & Seizure Education

The Center for Epilepsy & Seizure Education is in British Columbia, Canada, and started in 1998. Their mission is "dedicated to creating and providing support, information, and education to families and individuals who live with epilepsy, their support staff, educational personnel, friends, co-workers, health care providers and anyone else affected by epilepsy." You can follow them on most social media channels including Facebook, Twitter, and Instagram.

The Voice for Epilepsy

The Voice for Epilepsy mission is to "raise awareness of epilepsy, building a community of shared experiences giving individuals a voice to connect and feel supported." You can also read my interview with the founder, Kasam Parker, to learn more about how he started the organization in Birmingham, UK, and his own experience with epilepsy.

Do you have questions or know of any other helpful epilepsy resources? Feel free to email us at hello@neureka.ai and stay connected with us on Twitter, LinkedIn, Facebook and Instagram!

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