The Wonderful World of Seizure Diaries

August 3, 2020
Education

Ask any person with epilepsy, and they’ll probably tell you that accurately tracking seizures is difficult. For one, life gets busy. For another, some common types of seizures can impair memory, making it difficult to remember exactly what happened. Oftentimes, it’s the caretaker spearheading seizure logging efforts, but even their memories are fallible.

But, even though it’s a challenge, recording seizures is crucial. Keeping track of seizures is an essential component of capturing critical health information that people with epilepsy and their medical team can use to identify patterns, potential triggers, medication effectiveness, and ways to improve an epilepsy treatment plan.

“Objective measure of the seizure frequency… for many neurologists is one of the most important things for tracking how well their patients are doing,” said one epileptologist we recently interviewed.

Welcome to Seizure Diaries

The most common way to track seizures is a seizure diary. Rather than a simple journal, seizure diaries come in many paper and digital forms. But fundamentally, they are a record of information about a person’s seizures that they can share with doctors, caregivers, or family members.

Nowadays there are so many different types of seizure diaries—old-school pen-and-paper diaries, apps on your phone, online diaries, and wearables devices—so every diary works just a little bit differently.

Most seizure diaries help people with epilepsy and/or their caregivers keep track of critical details about seizures, including their frequency, duration, and symptoms. Some diaries also help track additional factors that provide further insight into epilepsy, like what the recovery period was like, the person’s experience and mood, and whether they had an aura or other changes in awareness. Diaries can also help monitor for side-effects and response to medication.

Seizure diaries are clearly an indispensable tool in managing and treating epilepsy.

Seizure Diary Problems

But, consider this: even when people with epilepsy do use a seizure diary, they might run into unexpected problems when trying to share that information with their doctor.

Following more than a dozen interviews with various Epilepsy Foundation chapters, we’ve identified the top issues with traditional seizure diaries:

  1. People with epilepsy often forget to bring their pen-and-paper diary to the doctor’s office.
  2. The person may have recorded just a fraction of their seizures, severely underestimating their seizure frequency.
  3. There isn’t sufficient time during a physician appointment for the doctor to scroll through the phone-based diary apps or hand-written notes to synthesize patterns of their patient’s seizures.
  4. Most seizure diary apps don’t capture sufficient data (such as mood and/or diet) that could otherwise help personalize and optimize their treatment plans.
  5. Most apps don’t have medication reminders built in, so the patient needs to use multiple apps to manage their condition, making the entire tracking process difficult, inconvenient, and easy to forget.

All of these problems associated with traditional seizure diaries are common—too common.

Our Solution

That’s why we have pioneered an all-in-one seizure diary smartwatch.

With just the press of a button, our wearable smartwatch logs seizures and automatically captures health data—like heart rate and other health markers—using specialized built-in sensors. With an easy-to-use interface, our smartwatch also allows users to create voice diary notes, send an alert to their caregiver, track their mood, and set up medication alerts and reminders.

Even better, the doctor can instantly and remotely access their patients’ seizure history and health data through our NEUREKA™ data platform, which comes fully equipped with an intuitive graphical interface, making it easy for doctors to quickly spot underlying patterns and optimize treatment.

Better data means better treatments for epilepsy. The anonymized data we collect will help scientists understand, treat, and—hopefully—someday predict seizures and Sudden Unexpected Death in Epilepsy, or SUDEP.

Tracking seizures can be hard—but it doesn’t have to be anymore.

We are committed to the ambitious goal of using big data and wearable smart technology to revolutionize treatment options for epilepsy. By bringing our smartwatch to market, we aspire to empower and bring peace of mind to millions of people with epilepsy and their caregivers.

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